New Year, New You, New Heights. 🥂🍾 Kick Off 2024 with 70% OFF!
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New Year, New You, New Heights. 🥂🍾 Kick Off 2024 with 70% OFF!
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ISBN: 9780374600853
Publisher: Farrar, Straus and Giroux
Think about the last time someone gave a name to what you were feeling. Maybe a doctor. Maybe a friend. Maybe a word you found online at two in the morning. Did that name set you free? Or did it start to swallow you?
Rachel Aviv was six years old when she stopped eating. She had never heard the word anorexia. On the hospital unit, older girls taught her how to be a good patient. One of them, a twelve-year-old named Hava, became her guide. Rachel got better. Hava did not. Decades later, Rachel went looking for the reason why.
The philosopher Ian Hacking gave this puzzle a name. He called it the looping effect. A label changes the person it describes. The person then changes what the label means. The two keep feeding each other. A diagnosis is never just a note in a chart. It is a story. And stories reshape the people who live inside them.
In 1934, the psychiatrist Aubrey Lewis tried to define insight. He called it the correct attitude to a morbid change in oneself. But who decides what counts as correct? Your doctor? Your family? Your god? William James once wrote about the unclassified residuum of human experience — everything real that our categories simply fail to hold. That leftover is where most suffering actually lives.
This is a microbook about four people who did not fit the categories. And about what the categories did to them.
In 1979, a successful kidney doctor named Raphael "Ray" Osheroff checked into Chestnut Lodge, an elite psychiatric hospital in Maryland. He was severely depressed. He paced the halls for hours, wearing holes through his shoes. He lost forty pounds.
Chestnut Lodge believed in long-term psychoanalysis. Medication was considered a shortcut that buried the truth. So for seven months, Ray's doctors pushed him to dig for the unconscious root of his pain. Dr. Manuel Ross told him something he never forgot: "You are not heroic enough to be tragic." Ray got worse. His family pulled him out.
He went to Silver Hill, a hospital that had embraced the new biomedical approach. They gave him antidepressants. Within weeks, he was functional again. The contrast was so stark that Ray sued Chestnut Lodge for malpractice. Osheroff v. Chestnut Lodge became a landmark case — what one observer called a showdown between two forms of knowledge. Biology won. The era of the couch gave way to the era of the prescription pad.
But winning did not settle Ray. He had read Nathan Kline's 1974 book From Sad to Glad, which promised depression was a chemical problem with a chemical fix. He believed it. He still spent the rest of his life writing and rewriting his own story, never able to explain to himself what those lost months had taken.
In Chennai, India, a Brahmin woman known as Bapu felt something enormous open inside her. She fell in love with the god Krishna. She wrote devotional poetry. She wanted to leave her kitchen and her marriage and live as a wandering ascetic, following the path of Mirabai, the sixteenth-century poet-saint who abandoned her royal husband for the divine.
In that tradition, her state had a name. God intoxication. Saints were supposed to look unhinged to ordinary people. But Bapu's family had grown up with Western medicine, and what they saw was a woman neglecting her children and disappearing for days.
They took her to doctors. Dr. Peter Fernandez diagnosed schizophrenia and ordered electroconvulsive therapy. Bapu described the treatment in two syllables: "Zick, zick." Her family also tried another story entirely. They brought priests from Kerala to drive out a Brahma Rakshasa, the ghost of a dead Brahmin believed to possess the living.
Three explanations, three different women. At Kilpauk Mental Hospital — an institution built under British rule to sort the mad from the sane by colonial standards — only one of those stories was allowed in the file. Bapu kept writing poems anyway. Her notebooks were the only place she got to narrate herself.
Naomi Gaines grew up in the Robert Taylor Homes in Chicago, a wall of concrete towers where violence was the weather. She was bright, funny, and watchful. As a young mother, she began reading deeply about the history of racism in America — medical experiments, surveillance, children taken.
Then she read about MKNAOMI, a real government program referenced in the conspiracy book Behold a Pale Horse. Her own name was in it. Something snapped into place. She became convinced that the state intended to exterminate people like her and her children, and that a slow torture was coming for her twin boys.
Here is the uncomfortable part. Her raw material was not invented. In 1851, the physician Samuel Cartwright published a diagnosis called Dysaesthesia Aethiopica — the supposed laziness of enslaved people, curable by whipping. American psychiatry has a long record of calling Black suffering a disease and the cause of it normal.
On July 4, 2003, Naomi walked onto the Wabasha Street Bridge in St. Paul with her fourteen-month-old twins. She dropped them into the Mississippi and jumped after them. One boy survived. One did not. She lived.
Naomi's case turned on a standard written in England in 1843. The M'Naghten Rule asks whether a defendant knew the nature of the act and knew it was wrong. Naomi's belief about her children was not treated as a delusion worth examining. It was treated as bizarre, and therefore as nothing.
The system then asked her for something specific: insight. Agree that your mind was broken. Agree that the world had nothing to do with it. Naomi could not fully do that, because part of what she believed about America was documented history. Refusing to split her experience in two was read as refusing to get better.
She was sent to prison and spent sixty days in solitary confinement at the Shakopee Correctional Facility. From outside, Shakopee looked almost gentle — people called it the cupcake prison, surrounded by a knee-high hedge instead of razor wire. The hedge did not soften the cell.
What actually helped her came from an unlikely direction. The prison librarian, Andrea Smith, treated Naomi as a reader and a thinker. She brought books. She argued about ideas. For the first time in years, Naomi had an environment of intellectual connection — someone meeting her mind instead of grading it.
Laura Delano grew up in a wealthy, high-achieving New England family, the kind where excellence is assumed. At thirteen she was a nationally ranked squash player. At fourteen she felt a rage she could not place. A psychiatrist diagnosed bipolar disorder, and Laura grabbed the explanation like a rope.
The explanation had a famous source. In 1965, Dr. Joseph Schildkraut published a paper proposing that mood disorders came from imbalanced brain chemicals. It was offered as a hypothesis. It traveled through the culture as a fact — the broken-brain story that millions of people have used to understand themselves.
Over fourteen years, Laura took nineteen different medications, including Prozac, Provigil, and Abilify. Each new drug came with a new side effect, and each side effect came with a new drug. She felt flat. Sex meant nothing. Ambition meant nothing. After a suicide attempt in Maine, her diagnosis shifted to borderline personality disorder — a label that recast her very personality as the disease.
By then, Laura had no answer to a simple question. Where did the illness end and she begin? The diagnosis had eaten the whole person.
Laura came across Robert Whitaker's investigative book Anatomy of an Epidemic, which argued that long-term psychiatric medication could, for some people, make conditions more chronic rather than less. She decided to come off everything.
No doctor guided her. Psychiatry had spent decades learning how to start drugs and almost nothing on how to stop them. So Laura found help online, on a forum called Surviving Antidepressants, where people in withdrawal traded notes about tapering. Members there coined a word for the storms that hit them: neuro-emotion. Terror or grief that felt total, yet seemed to belong to the nervous system rather than to the life.
Withdrawal nearly destroyed her. Months of sleeplessness, waves of panic, skin that felt wrong. And then, slowly, feeling returned — including feelings she had spent half her life avoiding.
Rachel Aviv writes about her own version of this. On Lexapro, she functioned well and worked steadily. She also noticed something she could barely name: a dulling of what she calls the power to experience. She kept taking it. She kept wondering what she was trading away. That honesty is what keeps this from being a story about villains.
Ray, Bapu, Naomi, and Laura never met. But each of them collided with the same problem. A powerful institution handed them a story about themselves, and the story was too small.
Ray was told his pain was an unconscious conflict, then told it was chemistry, and neither account returned the years he lost. Bapu's ecstasy became a brain disease in one room and a ghost in another. Naomi's history was ruled irrelevant to her madness. Laura's whole character became a symptom. In every case, something true was captured — and something equally true was thrown out.
Rachel found the sentence that holds it all in Hava's journal, written by the girl who taught her how to starve and who later died of the illness. Hava wrote that she understood herself thoroughly and was still a stranger to herself. Deep insight, and no relief. Knowing the name of the thing is not the same as being known.
Diagnosis does real work: it opens doors, finds medication, ends shame. It just cannot hold a whole life. Biology, history, family, faith, and poverty all press on the same mind, and the story that heals is the one wide enough to carry them together. That width is not a luxury. For Ray, Bapu, Naomi, and Laura, it was the difference between being treated and being seen. We are never only our diagnosis — we are the story we are allowed to tell about it.
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Rachel Aviv is an American journalist and author, and a staff writer at The New Yorker. A 2004 graduate of Brown University, she wrote the 2022 nonfiction book Strangers to Ourselves: Unsettled Minds and the S... (Read more)
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